It is impossible to have a modern conversation about HIV and HIV
stigma without having the term “undetectable” used, misused, and abused. Those
involved in HIV activism certainly have strong opinions on how the term that
refers to an HIV-positive person’s undetectable viral load should be used (and
who is using it incorrectly). Some herald the term as a badge of honor worn by
those who are compliant in treatment and open with their HIV status, while
others would scold the same group of people for using the term as an excuse to
engage in unsafe sexual behavior.
Either way, oversimplified accolades and mudslinging moral
judgments have no place in a conversation about HIV stigma, prevention, and the
term that is a result of compliance with medication. With many gay men still
unclear about what being “undetectable” truly constitutes, how do we get to a
place where we can discuss what it does and doesn’t mean without all of us
looking dirty in the end?
For those who are still unsure: An HIV-positive person can achieve
undetectable viral levels after undergoing antiretroviral therapy. The viral
load affects the chance that they will transmit HIV. According to an article in Journal
Watch HIV/AIDS Clinical Care, one study indicated that
early antiretroviral therapy reduced the likelihood of transmission by 96%.
Once antiretroviral meds help a person achieve an undetectable viral load, it
is possible to remain at this level provided the person continues to take the
medication as directed.
An education on the specifics of HIV as it is today, including the
meaning of being undetectable, should be mandatory reading for gay men,
regardless of status. It is critical to the entire community to understand
where we are in terms of HIV research. No matter how far removed you are from
the HIV pandemic, you are still susceptible to the virus (especially if you
think you aren’t).
Now, unless we find a way to infuse subliminal HIV messaging into
the speakers of every H&M in the country, casual conversation among our
peers is the most effective method of education. But, as with many discussions
concerning HIV, the discussion quickly turns into the blame game. So who loses?
Everyone.
For the sake of conversation, let’s liken a person with an
undetectable viral load to a person who is HIV-negative. With both
classifications, you get tested regularly to make sure that you are still
safely in your category. But unlike being HIV-negative, discussing the meaning
of an undetectable status almost immediately gets bogged down by
shame-mongering and moral accusations. Use of the term is often ridiculed,
immediately placing judgment on the HIV-positive person who speaks about his
undetectable status.
The following quote was taken from a post that asked people how
they think we can make progress in eliminating HIV stigma:
“I'd like to hear more responsible discussion in our community
about how dangerous and reckless it is to use the term ‘undetectable‘ given the
implications of treating ’undetectable‘ status as if it were really something
different from being positive.”
This claim wasn’t made with malicious intent, but does give a lucid
demonstration of the difficulty of discussing HIV-related topics without
subconsciously casting judgment.
In fact, people who are undetectable should never stop talking
about their status. At the gym, on the subway, and even at Sunday services (if
that’s your sort of thing).
“Did you catch the last inning of the Rangers game last night?”
“Hell no, I don’t watch sports. But my viral load is 57!”
A person discussing their undetectable status is a beautiful thing
because it means they have been tested, are on treatment, and are open and
honest about their HIV status. The idea that the term “undetectable” is used
only to lure unsuspecting prey into performing high-risk sexual acts with
someone who is positive is both stigmatizing and criminalizing. This notion
removes all responsibility from the other party when they have just been given
the information they need to protect their own health. And it is, in fact,
their responsibility to protect their own health (and no one else’s).
Far too often, our community mistakes silence as an admission of
innocence. If no one asks a person’s HIV status, no one tells. Worse, some will
assert their HIV-negative status even if it’s been months or even years since
their last test.
Yet these proverbial question marks walk around every day,
unscathed by denunciations associated with their bedtime behavior. They aren’t
reduced to sweeping stereotypes of being sexual pariahs even though their
pseudo-negative HIV status could possibly place a person at much greater risk
than that of someone who is undetectable.
In the realm of sex and dating, the responsibility lies with you to
make the appropriate choices to protect your health. Unfortunately, people are
slutty, nobody likes using condoms, and everybody is a liar. But that doesn’t
mean we have to muddle the value of an undetectable viral load and debase a
group of people who are at least willing to be up front with their
status.
The sexual acts of gay men do not exist in two separate vacuums. If
they did, it would certainly be much easier to end the transmission of the
virus. Therefore the conversation about what it will take to decrease stigma
and increase testing must also exist without uninformed generalizations that
could silence many before they even speak.
In order for a conversation about HIV and HIV stigma to have
substantive meaning, assumptions, accusations, and generalizations need to
become “undetectable.”
... and just because you tested negative last month, doesn't mean that you will have the same luck this month, or next month.
ReplyDeleteALWAYS on my mind when getting tested
DeleteUndetectable has always presented challenges when educating about HIV. Bottom line: it's there and can be transmitted. It doesn't mean anyone is "HIV-free." Period! Great post, my naked brother! Much love and naked hugs!
ReplyDeleteHello brother LONG time no see, missed ya around these parts :-)
Delete